Be Part of Something Big

Thank you for your interest in this study. We have had an overwhelming response!

Open enrollment is currently closed as we confirm appointments and review eligibility of requests.

Sign up on our waiting list to be notified as we determine remaining availability.

Learn your story. Make history.

We’re excited to announce a visionary community-based health study that could unlock a new model for healthcare in Nevada. Renown Health and DRI are collaborating with 23andMe, a leading personal genetics company, and have offered thousands of northern Nevada residents the opportunity to volunteer for research and gain access to their individual genetic information for free.

Thank you for joining us as we take the first steps toward a better future.

 
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What life-changing discoveries lie ahead?

We are at an amazing moment in history and thanks to everyone, we can make a difference for your community, your family and yourself.

Your genetic code is unique; it helps define you. DRI and Renown have teamed up with one of the smartest companies in the world, 23andMe, to provide you with a tool that will help you understand your past, and use that new knowledge to help you, your community and your state have a healthier future.

And that is population health at its best.

Here’s What You’ll Need to Know

Four steps. It’s simple.

  • Schedule Your Appointment

    Create an account and sign up for a time that works for you.

    We offer four convenient times Mondays-Fridays (7:30, 9:30 a.m., 2:00 p.m., 5:30 p.m.) and three on Saturdays (9:30 a.m., 11:30 a.m., 1:30 p.m.).

    Appointments will be held at 1155 Mill Street, Renown Regional Medical Center. Please park in Mill Street Parking garage and meet your guide at the Sierra Tower information desk on the first floor. Parking instructions and map will also be emailed to you with your appointment confirmation.

  • Spit

    At your appointment, you will learn more about the study, including the 23andMe experience and a Renown specialist will walk you through the consent process and the kit instructions. You’ll spit in the saliva collection tube provided. Your saliva collection tube will be registered with a barcode so your results come back to you.

    The genetic information sent to Renown and DRI is de-identified and stored separate from personally identifiable information to ensure data privacy.

  • Discover

    In approximately 6-8 weeks, 23andMe will send you an email directly to you to let you know your reports are ready in your 23andMe online account. Log in and start discovering what your DNA says about you.

  • Share

    Share this free opportunity with your friends and family. Encourage them to enroll. Share your personal results with your doctor to learn more about your health. Share a healthy Nevada and a better future.

  • Why should someone participate in this study?

    Understanding your personal health data gives you control of your health that may help you to make better long-term healthcare choices. Beyond having access to your own 23andMe report, you’re also contributing to a large-scale population health research study that aims to improve the health of the state and potentially advance scientific progress in healthcare and the treatment of disease.

    Best of all? It’s completely free of charge.

  • Why is this important for Nevada?

    This study is an opportunity to improve the health of our state, accelerate the pace of scientific progress in the medical and biotechnology fields, and position Nevada as a leader in population health.

  • How does the test work?

    You simply spit into a tube, seal the tube and we will mail it to one of 23andMe’s CLIA-certified labs for DNA extraction and analysis.

  • Can I talk to my doctor about this?

    Yes! Renown is providing support to doctors who want to learn more about this pilot program.

Frequently Asked Questions

What is genotyping?

  • The analysis that 23andMe performs is called genotyping. Genotyping looks at specific locations in your DNA and identifies variations. These variations make you unique.
  • In choosing these specific locations, the company focuses on the variations that are known to be associated with health, ancestry and traits. Genotyping is a great way to start understanding how your genetics can impact your life.
  • 23andMe uses genotyping technology to look at specific genetic variants in the genome that can be informative about an individual’s health and ancestry.
  • Unlike DNA sequencing which analyzes all nucleotides in a gene to identify changes, genotyping detects specific known variants within the genome. 23andMe uses a custom Illumina HumanOmniExpress-24 format chip that analyzes approximately half a million variants.

What happens when I come to Renown to get my kit?

  • Study volunteers will park in Mill Street Parking and meet in the visitor waiting area in front of the Sierra Tower Information Desk. A guide will meet you at the visitor waiting area and escort you to the consenting site within Renown Regional Medical Center.
  • Volunteers will watch an instructional video detailing the 23andMe registration process, instructions for spitting and have ample time to ask questions. The volunteers will be provided laptops to register the 23andMe kit. Once registration is complete and all questions are answered, the volunteers will spit in the 23andMe kit to complete the process.

Will I have to give blood?

No, just saliva.

Who is managing all of this data?

  • For the study, 23andMe will manage DNA extraction, analysis and securely exporting that information to DRI and Renown Health. The genetic information is de-identified and stored in aggregate, separate from personally identifiable information, to ensure data privacy.
  • DRI’s Applied Innovation Center (AIC) will manage and store all Renown Health health data in the Institute’s secure, on-site data centers. DRI stores all data encrypted on an isolated network not accessible to the outside world. They use only de-identified data for analysis – this means there is NO way for researchers to identify participants.
  • The information returned to participants in the form of the 23andMe Personal Genetics Service is managed by 23andMe. Each participant has the option to set up a 23andMe account and receive the 60+ 23andMe genetic reports on health, traits and ancestry. Participants can close their 23andMe account at any time, if they so choose.

Where does my data go?

  • DRI will access and download study participant’s genetic data from 23andMe and the data will be stored for research at DRI. It is important to note that Renown Health has no way of tying genetic data to any medical records in their possession. The enrollment process the day of your sample contribution ensures this separation.
  • DRI stores personal information that researchers use for analysis (like date of birth) in a separate database from the genetic data, and they are only linked by a randomly assigned research ID.

Is my genetic data secure? How do I know it is safe?

  • When you participate in our research program, your data is de-identified so you remain anonymous.
    • That means your registration information is stripped from your genetic data so you cannot be identified. We do not include any of your registration information (like your name, email, etc.) in our research database. We store personal information that researchers do need for analysis (like date of birth) in a separate database from the genetic data, and they are only linked by a randomly assigned research ID.
  •  All research activities conducted by 23andMe Research, Renown Health and DRI are governed by an Institutional Review Board (IRB). An IRB is an independent ethics panel that ensures all research is conducted in accordance with strict government and ethical guidelines.

How do you protect my privacy in your research?

  • When you participate in our research program, your data is de-identified.
    • That means your registration information is stripped from your genetic data so you cannot reasonably be identified. We do not include any of your registration information (like your name, email, etc.) in our research database. We store personal information that researchers do need for analysis (like date of birth) in a separate database from the genetic data, and they are only linked by a randomly assigned research ID.
  • Most of our research is performed using aggregate-level data.
    • That means researchers link your de-identified data with millions of other data points and look at the data set as a whole. We do not share your individual-level information with any third party without asking (and receiving) your written consent.
  • Participants will also have the opportunity to participate in additional research conducted by 23andMe, if they so choose (there is no obligation to do so). All research activities conducted by 23andMe Research are governed by an Institutional Review Board (IRB). The IRB is an independent ethics panel that ensures all research is conducted in accordance with strict government and ethical guidelines. 23andMe employs robust data privacy and security protocols. Individual-level data is only disclosed to third parties with the explicit consent of the participant.